#esaSOS: just when
you think it's safe to be disabled again - - -.
Here we go again! Just as we thought things were beginning
to settle down those of us who make up the disabled community in this country
are having to prepare ourselves for another onslaught on our dignity, our
credibility and our abilities. For purely ideological reasons the Coalition
Government, and yes, Liberal Democrats, you are as culpable as the
Conservatives for what is being done to claw back a few pounds a week from those
of us who are unable to serve the capitalist machine for medical reasons, while
you cut the tax rates of those with the most money in this country (including
yourselves) and you do nothing about those who find a way around the latest tax
regulations before the ink recording them has dried on the page.
The Atos inspectors, -(yes that is what they are, Assessors
are given licence to apply reality to whatever it is they are assessing while
inspectors simply ensure that a product or commodity - in this case those who
the medical professions have deemed "disabled" - fit a predefined set
of parameters)- have been given instructions to play what amounts to a guessing
game with the quality of our lives.
They are now under instruction from the government to
imagine whether or not folk like me can be fitted back into "the
workplace" if we used some aid or adaptation we might never have heard of,
or seen, and regardless of whether or not we, as INDIVIDUALS, are able to make
use of that aid or adaptation. This is equivalent to putting a 14-year-old in a
Grand Prix car on a public road because they might be a good driver at some
unidentified point in the future. Many of us will be subjected to an equivalent
level of danger following our INSPECTION. If it were not so serious it would be
laughable.
Three years ago I asked my GP if there was somewhere I could
go to learn how to “drive” a wheelchair as I thought the time to submit to the
pain was coming near. He didn’t agree, he pointed out that permanent use of a
wheelchair has implications for skeleton and muscles. We reviewed my pain
management instead. So what happens if the Atos inspector decides I can work
from a wheelchair?
And there is more - - -
Those of you who are familiar with my blog will know that I
live with both a recognised physical disability and a diagnosed mental illness.
I am not sure what the implications will be for me of the latest Tory/Lib Dem
instruction to the inspectors that they MUST NOT take account of both the
physical and the cognitive disabilities of the human being standing before them,
but I am assuming it will mean, in my case, that I am inspected twice. If that
is the case it will be incredibly annoying but as those responsible for both my
physical and my psychiatric well-being continually reassure me that either one
of these conditions, and the strong medication I take in order to manage each
one of them, should mean I am never considered fit for employment again. I have
to continuously remind myself of some of the true horror stories about the fate
of disabled persons who have been inspected by Atos in order that I do not
become complacent. For I, and only I, am very aware of what the effect will be
on my mental health if I allow myself to assume that I will continue to be
deemed unfit for employment and the opposite occurs.
One of the side-effects of my "Degenerative Disc
Disease" is arthritis. Earlier this year I was asked by the charity "Arthritis
Care" to provide a filmed account of the impact of that aspect of my
disabilities on my lifestyle and on my well-being, (BY WHICH THEY MEANT MY
MENTAL HEALTH). I'd never really thought about that before, it caused me to
recall the time in my early twenties when I contracted glandular fever.
Everybody warned me to be wary of the depression glandular fever causes and I
would inwardly smile because, unbeknown to them, I was already a diagnosed
chronic depressive and I could not imagine that anything could be worse. I was
half right, the depression associated with the glandular fever was not "worse"
than that I was already experiencing, BUT IT WAS DIFFERENT: AND IT WAS EQUALLY
FRIGHTENING AND DEBILITATING. I was able to point out on the film that the
depression which comes as part of the package of physical and cognitive pain
associated with arthritis is similar. It is also the case that the depression
which came with the "illness" of glandular fever, and that which is
caused by the consistent pain and the disabling aspects of arthritis, was/is
not relieved by the medication prescribed to alleviate my psychiatric
depression.
As you can see, I know from experience that to deny the
cognitive effects of both chronic illness, and chronic impairment, on the
mental health of those who live with either of these things is ridiculous. Even
more ridiculous is the assumption that an inspector has the permission to
ignore the impact of living with the affects my defective body and my defected
mind have upon each other, in order to "fit" me into some template of
what a worthwhile (worthwhile within the capitalist system that is) person is.
The "able-bodied" should take heed of what is
happening here. If ever evidence were needed to prove that life in the 21st
century is lived as nothing more than a cog in the machine, or that
individuality is no longer valued and has no place in a society that places the
creation of money above the creation of a caring one, this is it. You who move
through life unencumbered by physical disability or psychiatric illness need to
join our crusade. As someone who went to work one-day a physically healthy
human being and returned and "invalid" I can assure you that you
cannot afford to be complacent and perform the “them” and “me” cognitive
disassociation this government is encouraging you to do because it prevents you
from accepting and empathising with the vulnerability of the human condition.
It could be you or one of your loved ones tomorrow, I wonder if you will then continue
to condone the bullying, victimisation, and stigmatising that we
"disableds" are living with right now. It will be too late then of
course, the systems and the recognition we fight for will have gone. And if you
happen to be an Atos Inspector I genuinely hope the day never comes that you or
your loved ones have to face the future you are creating for me and my
community.
Never forget, it's me today, it could be you tomorrow.